Thursday, May 30, 2013

Mellow Yellow

Over the last couple of weeks I have had so many things I've wanted to blog about and share (how successful Art Bra Austin was is a good example and wanting to share pictures of my outfit), but to be quite honest, I've been feeling pretty crumby lately (yes, I decided to go the PG route in describing how I feel).  I started my new chemo cocktail on May 8th (an infusion I would get once every 3 weeks), and even though I was told it was going to be a rough one, I kept thinking, "sure, I'll have a rough week and then I'll have 2 weeks to live it up and have some fun."  Welllllllll, that's not exactly how it went down.  The last 3 weeks have been pretty miserable (again, PG version).

On top of the extreme dehydration, nausea, stomach issues, hair loss (thankfully I've started out again with a thick head of hair so it's not too noticeable), and what turned into a constant pain in my right side (yep, the liver quiver)... there's also the chest/stomach pains I've been having.  Unfortunately these pains became so bad that I would instantly throw up.  I've been taking an anti spasm medicine for my esophagus and after tweaking the dose a couple of times, these chest/stomach pains are finally better.  The endoscopy I ended up having thankfully came back clear, but the GI Dr believes this is all stress related.  I'm sorry... stress?!?  What is that???  And what could I or my body be possibly stressed about?!  Weird!

So this is the deal... I was supposed to get my 2nd infusion this week.  After keeping Dr. H updated on a regular basis on my side effects and how I've been handling them (or not being able to handle them), and walking into her office and having her comment on how yellow I was... chemo was put on hold and a CT scan was ordered that afternoon.  

The results are in... The lesions on my liver are slightly larger, but the problem is that the lesions are interfering with bile in my liver getting to the bile duct.  

Side note:  Before I go on any further, here's a little fun fact about bile... because don't we all need to know a little more about bile!  And no, this is nothing fancy, just some quick info from Wikipedia (however reliable or unreliable you find Wikipedia)... 

A bile duct is any of a number of long tube-like structures that carry bile.  Bile, required for the digestion of food, is secreted by the liver into passages that carry bile toward the hepatic duct, which joins with the cystic duct (carrying bile to and from the gallbladder) to form the common bile duct, which opens into the intestine.  Blockage of the bile duct by a cancer, gallstones, or scarring from injury prevents the bile from being transported to the intestine and the active ingredient in the bile (bilirubin) instead accumulates in the blood. This condition results in jaundice, where the skin and eyes become yellow from the bilirubin in the blood. 

So yes, this explains my yellow hue.  Tomorrow I will have an outpatient day surgery where they will put a drain in my liver which will alleviate the backup of bile in my liver.  Next week we'll do some more lab work and see how this procedure is helping out.  If this works (or should I say when this works), I will have a lot more options as far as chemo goes.

Prayers, good vibes, positive thoughts and energy are of course welcomed!  As far as me needing any help... from what I understand, this should be an easy peasy procedure and I have a ton of family in town and coming into town to help me out.  I'll keep you posted on how things are going as soon as I can.  

I also can't wait to share with you some of the more fun and entertaining "chapters" in my cancer journey.  My Art Bra Austin experience is at the top of the list, but I also can't wait to introduce you to my new BFF!  Gotta love a teaser!  Now I just need to feel better to follow up on these blog entries!  ;)

3 comments:

  1. So sorry to hear about this setback, Casey. But damned if you didn't still make me laugh (you have stress?! Weird!)! Your blog is amazing.

    I'm wishing you a smooth and easy procedure tomorrow and new cancer ass-kicking around the corner!

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  2. Casey, you are much loved. We are prayer champions and will have a very harsh talk with the Big Guy. He will not let a little bile duct get in rhe way of His plans for you. Prayers and good vibes headed yoir way.

    The Trott Family

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  3. YOU ARE AMAZING. I'm sending you prayers, positive vibes, light, love, energy, healing thoughts. Love you sister.

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