Friday, October 12, 2012

2012 Komen Update


I just wanted to clarify what's going on with the Komen race this year...

1. I was hoping to redirect some of my fundraising efforts to the Mamma Jamma ride. Quite a few of my fellow Pink Ribbon Cowgirls are riding and since I'm unable to ride, this was my way of supporting them at the same time supporting local charities who will benefit from the fundraising. I can't thank those of you enough who have contributed!

2. I was really, really hoping to participate and walk in this year's Komen race. Unfortunately, due to the pain I have been experiencing in my hip recently, I've decided that walking isn't a good idea. But I encourage everyone to join the team and walk your hearts out. I had a blast last year and it was an experience I'll never forget. Hopefully I'll be joining y'all next year!

Tuesday, October 9, 2012

(Knock on Wood)


Hey hey!  It's October and it has been a helluva better month than September so far (knock on wood).  And speaking of October...

We all know October is Breast Cancer Awareness month.  If you are unaware of this, I can only assume you are color blind... pink is EVERYWHERE!  So because it's breast cancer awareness month, Austin's KEYE TV's Mileka Lincoln is running a series of stories about breast cancer featuring education and the importance of information in the fight against breast cancer.  So last week I received an email from my Doctors office asking if I'd be interested in meeting w/ Mileka and I thought... sure, interviewing w/ a slight case of chemo brain... what could go wrong?!  

And so the interview begins...

Mileka Lincoln:  Could you please state your name and spell it for me

Me:  Casey Damen, that's C-A-S-E-Y D-A-M-E-N.  (Me thinking:  wait, did I spell that right?!  I hope my pronunciation was enough.  I mean so many people think my last name is spelled Damon or Damien.  And one time someone thought it was Demon.  Really, could you imagine my last name being Demon... Whoa, did she just ask me another question???  Ahhhhhh crap!)

From there on I was COMPLETELY thrown off my game!  I had so many things I wanted to say... apparently my spiel on quantum physics didn't make the cut.  Hmmm, well, maybe next time!

Click Here to check out the interview.  

And speaking of clinical trials, I had a long day in the infusion room yesterday w/ my first infusion of MM-111.  So far I'm feeling pretty good (knock on wood).  I'll keep you posted... there's more to come in October.

Thursday, October 4, 2012

Open Arms


Have you ever had "one of those days?"  You know what I'm talking about... a day when nothing seems to be going right.  You feel like you're drowning or suffocating because one thing after another negatively effects you.  Whether it's physically or mentally or a combination of both.  Well, September was "one of those months!"  

So October, I welcome you with open arms!  

I'm trying real hard to process everything that's going on in my life while trying to stay positive and have a good attitude.  And let me tell you, just b/c I appear to have a "positive attitude" about all this... not a day goes by that I don't say Cuck Fancer!  Well, at least some version of that!  I feel myself pulling out of a funk and trying to get that fighting spirit back (I know, do you have the Eye of the Tiger playing in your head too?).  I'll be starting my new trial drug (MM-111) on Monday and hopefully this will be the other, other, other secret weapon!  Until then, here are a few things that have brought a smile to my face... 

1.  Spending time with my sister, her husband and my 2 amazing nieces...

Cheers!


2.  Realizing that so many generous people have donated to my Mamma Jamma Ride fundraising goal.  You know you want to check out my fundraising honor roll!  Are you on it?!?  CLICK HERE!

3.  A few pictures from my recent trip to British Columbia, Canada...




Shotgun!

 Vancouver


Look at me... I'm on a yaaaaaaaacht!


Take 2!




Tag team!


Please, oh please let my hair grow back like this!

Embracing the bald head!

Tuesday, September 25, 2012

What's your excuse?


After having an MRI on my hip last Friday, the results did not make a very convincing case for radiation.  YES… another cancer first has been postponed!  The bone mets do in fact appear stable.  This is great news!  There are however small ligament tears and strained tendons that might be causing the pain in my hip.  From what I understand, torn tendons can be caused by strenuous activity or even athletic injuries.  Since I haven’t been involved in any strenuous activities or athletic events lately, I think we can chalk this up to me being “fragile.”  You know, there's a reason I played golf in high school.  Anyway, since I’m tolerating the pain fairly well, I’m going to be taking it easy in hopes these “kinks” work themselves out.  If the pain persists and gets worse, then we’ll have several options to move forward from there, but at this time… I have a great excuse to sit on my ass! 

P.S.  I'll be starting the new cocktail/trial drug MM-111 on Monday, October 8th and I'll be back on a weekly infusion.  

Thursday, September 20, 2012

Blah!

Well, I wish I had something funny to say or comment on, but I'm mentally zapped and figured I should at least update my blog with what's going on.  I had a CT scan last week and the 3 lesions that we're down to on my liver have all increased in size.  Nothing to be alarmed about, but at the same time Dr. H is thinking this cocktail may not be my secret weapon.  In another week or two I'll be starting a new cocktail which will be a trial drug.  It's called MM-111 (I know, I don't even have something witty or sarcastic to say about the name) and I'll be taking it with an oral drug I've taken before, Tykerb.  In the meantime, my hip has been bothering me so we're discussing possible radiation options to help with the pain.  The CT showed activity in the hip area, but no new activity since the last scan.  Whew!  Meaning my bone mets are stable.  Possible radiation... another cancer first for me.  I'll keep ya posted...

Tuesday, August 28, 2012

Texas Mamma Jamma Ride


Not that long ago I announced that Casey's Cancer Kickin' Krewe was the top fundraising team for last year's Austin Komen Race for the Cure.  I'll be walking again in this year's Race for the Cure, but I wanted to share the love and redirect some of my fundraising efforts to the Texas Mamma Jamma Ride.  I'm unable to participate in this year's ride, but I wanted to spread the word and encourage my closest internet friends to participate.  And if you're unable to ride or volunteer, I encourage you to consider making a donation.  

What:  Texas Mamma Jamma Ride
When:  October 27, 2012
Where:  Reunion Ranch
About:  The Texas Mamma Jamma Ride is a well-supported, one-day bike ride which raises money for local agencies that serve thousands of Central Texans with breast cancer 365 days a year. Participants have a choice of bike routes that run anywhere from 13 to 100 miles. It is a ride, NOT a race. It is an event for men, women, and families, and all levels of biking experience.
DONATE:  Please visit My Personal Fundraising Page

Be a part of the most successful breast cancer ride in the country and help us raise funds and 
awareness to fight breast cancer in Central Texas.

1 in 8 Women Will Be Diagnosed With Breast Cancer
If you know 8 women, chances are that one of them has been or will be affected by breast cancer.  There were 207,000 new cases of breast cancer reported by women in 2011, and nearly 40,000 women died from breast cancer last year.  The disease also affects men although it is much less common.  When anyone in the family suffers from breast cancer, the whole family feels the effects both emotionally and financially.
Your Participation Means More Survivors
You can make sure that early detection services, which are key to surviving breast cancer,  are available to all Central Texans regardless of their ability to pay. You can help provide funds for treatment so that people don’t have to choose between feeding their kids and getting well.  You can make sure that the newly diagnosed have the support, help, and guidance they need to survive.  You can make sure that everyone has the knowledge they need to reduce their risk to prevent recurrence of the disease. YOU can make a difference in the lives of thousands of people right here in Central Texas and help give them a fighting chance.
Getting Involved is Easy and Feels Good
There are many ways to help and no matter which one you choose you’ll feel good and have a great time knowing you are part of this community of caring.  
  • Volunteer:  All you need is a willingness to help and the time to give.  We have hundreds of positions available both leading up to and on Ride day.
  • Rider:  All you need is a bike and a willingness to take on a physical and fund-raising challenge. Free weekly training rides and skill sessions will prepare you for this amazing experience.  Each rider is asked to raise a minimum of $500. 
  • Team Captain: All you need is a willingness to recruit friends, family and colleagues to sign up for the team as an actual or a virtual rider and help them get started fundraising to make a difference.
  • Donor: Your gift insures that loved ones, friends and others have access to the support they need by helping agencies and organizations that change the odds for those with breast cancer every single day. 
You Can Do More Than You ThinkThink about how many people you know... friends, family, colleagues, faith community, fraternal organizations, sport groups, social clubs, people you do business with personally or professionally.  Now think about how many people have been affected or had a loved one affected by breast cancer. Nearly everyone knows someone.  When a loved one is diagnosed, friends and family want to help but often don’t know how or feel powerless to make a difference.  When you ask people you know to support you in the Mamma Jamma Ride, you are giving them an opportunity to take charge and fight back against a disease that impacts so many and to give back to our community in a fun supportive way.
What’s Raised Here Stays Here
This collaborative event supports 10 local nonprofit organizations providing a wide variety of supportive services to people in Central Texas.  This Ride is about challenging yourself, having fun and making a difference in our local community.
  • Breast Cancer Resource Center
  • Seton Family of Hospitals
  • Komen for the Cure, Austin Affiliate
  • Wonders and Worries
  • The Care Communities
  • Cancer Connection
  • Wings
  • Capital of Texas Team Survivor
  • Community Action
  • Sustainable Food Center


Thursday, August 23, 2012

What do the Following Have in Common: Telly Savalas, an Eagle, Curley from the 3 Stooges & Me

After 1 year and 10 months, my hair finally called it quits.  When I started this newer cocktail ("the other secret weapon") I was told that one of the drugs, Taxotere, could very well be the drug that takes my hair.  After 2 weeks of my first infusion my hair definitely started thinning.  I thought, eh, no biggie!  My hair thinned quite a bit last year, but never completely fell out.  Thankfully my hair has always been so thick.  Well, when I hit the 3rd week after my first infusion, I took a shower and lost pretty much half of my hair.  I can't even begin to describe how horrible of an experience this was.  It was disgusting, gross and flat out disturbing.  I decided then that I couldn't bare the thought of attempting to wash my hair again.  So what did I do... I pulled a Britney Spears and shaved my head!  I went to a salon here in Austin called Top This Salon who specializes in Shave Parties for chemo patients.  I mean if I'm going to lose my hair I might as well have a few laughs and the support from a few family members and friends.  I wish I could have put a little more planning into my Shave Party, but I was leaving the next day on vacation.  I spent a week in British Columbia, Canada with a few of my besties and had the time of my life!  I'm not going to lie, it's been weird getting used to my bald head.  I would catch a glimpse of myself in the mirror and think, "oh my god, I'm bald!"  But it is what it is!  If I have to lose my hair to kick some cancer ass, then so be it!  Yesterday I had my 2nd infusion and I'll continue to have my infusions every 3 weeks.  Right now we're looking to have my next PET scan in about 6 weeks or so.  Until then and when I get a chance, I'll try to post some of my vacation pictures.  In the meantime, here are a few sneak peak pics of me and my bald head (and maybe a couple w/ my mohawk)...