After a nice loooooong 3 day work week, what do you want more than anything to relax and take the edge off ?!? How about a nice chilled Barium martini?!? Okay, not my first beverage of choice, but I've started prepping for my CT scan tomorrow morning. I'll keep you posted when I find out the results. Until then, SALUD!!!
In October 2010, I was diagnosed w/ Stage IV Breast Cancer. When my Oncologist told me the news, I was in shock. At the age of 32, that was the last thing I expected to hear. When the initial shock wore off, I asked what I needed to do to start kickin' this cancer's ass! With the love and support of family and friends, I'm kickin' cancer's ass one day at a time!
Wednesday, May 2, 2012
Wednesday, April 11, 2012
No News is Good News
Okay, so "no news is good news" isn't always the case, but this time it is! I've been having too much fun over the last couple of weeks and have been neglecting my blog. So let me catch you up to speed...
Because we got such amazing results from this last PET scan, we're going to stick with the chemo cocktail I'm on for another couple of months. If we can get down to 1 manageable lesion, then Dr. H said they can go in there and cut, snip, freeze, or whatever it is they can do to "get rid" of the cancer cells/lesion. Woohoo!! From there we'll discuss possible surgeries... Surgeries haven't been an option for me up until this point because we needed to get everything under control w/ my liver. From there I'll be on a maintenance program which can be anything from taking oral drugs, infusions or possibly a combination of both... but at least it won't be as aggressive or as intense as it is right now. Not only will this help w/ the bone mets, but hopefully prevent the cancer from spreading back to my liver or anywhere else in my body for that matter.
I'll keep you posted if anything changes or if I come across anything interesting, funny or anything I just have to or want to share!
Btw, I'm feeling great! After recovering from my infections and getting great news from my PET, I've been enjoying the hell out of the last couple of weeks! ;)
I'll keep you posted if anything changes or if I come across anything interesting, funny or anything I just have to or want to share!
Btw, I'm feeling great! After recovering from my infections and getting great news from my PET, I've been enjoying the hell out of the last couple of weeks! ;)
Thursday, March 15, 2012
Ass Kickin' in Progress
Yesterday I met with Nurse Prac Lisa to discuss the results of my PET. Normally I would be meeting with Dr. H to discuss results like this, but for some reason the world did not stop for the results of my PET scan. From what I understand Dr. H is enjoying time with her family on Spring Break. Okay, okay, I'll let it slide this time. Who knew it wasn't ALL about me?!? ;)
So here we go, I have details about the results. From the report itself, this is concerning my liver:
"Currently there are one or possibly two adjacent metastases within the dome of the right hepatic lobe as well as another subtle lesion within the right hepatic lobe inferiorly. Previously there were at least 20 metabolically active hepatic metastases."
Hello?!? 20 down to 2, possibly 3 lesions?!? WOW! I couldn't be happier!
As for the bone metastases, unfortunately the Neulasta injection I've been getting to boost my WBC, obscures visualization in the scan so we are unable to compare the bone mets to the results from my last scan. Nurse Prac Lisa did not seem to be too concerned about this and quite frankly, neither am I. My chemo cocktail includes an infusion called Zometa, which is specifically given for treating the bones, keeping the bone mets under control. In past scans we have seen improvement in the bone mets while I've been on Zometa, so I have high hopes it's still doing it's thing! And in the grand scheme of things, our main priority here is the liver (because it's a functioning organ) and getting the liver mets under control... which we are!! Woohooo!!
Btw, you won't believe what my CA 27-29 tumor marker is down to... on Feb 29th it was at 92 and on Mar 14th it's down to 81.2!!
Yep, I'd say there's an ass kickin' going on!
Thursday, March 8, 2012
The Results Are In
Can you believe it... A cold front will move into the Austin area later today, bringing thunderstorms from late afternoon through early Friday morning. What?! Oh, oh, oh, you're wanting to know the results from my PET scan. Well, there's nothing wrong w/ a little weather update...
So I don't know all the details (I will find out more next week when I meet w/ the Nurse Prac), but we do know that there is overall improvement concerning the liver metastasis. Can I get a hell yes!! I'm SO excited! I just knew we were going to get good news! Thanks to everyone who has been thinking of and praying for me. Your support means the world to me! After battling infection after infection... after infection... I needed this good news. The nurse I talked to on the phone said Dr. H couldn't be more pleased w/ the results. The chemo cocktail I'm on is looking like a winner. Yay!!
Wednesday, March 7, 2012
Cheers!
This my friends is the Barium I'm required to drink before my CT and PET scans (1 of several glasses). It's a contrast agent used to highlight specific parts of the body and make them easier to see... it temporarily changes the way x-rays or other imaging tools interact with your body. I can't say it's pleasant to drink, but I guess I've had enough scans that I'm used to it. Of course I think the umbrella helps... makes me feel like I'm drinking a pina colada on a beach somewhere. I left the package of umbrella's w/ the receptionist at Tx Oncology hoping I'd get a smile out of the next person that came in dreading the milky white substance. Fingers crossed it did! I tell ya... it's the little things!
So Cheers! Cheers to kickin' cancer's ass!
Monday, March 5, 2012
Finally!!
It's about damn time! I had to revise what I was calling "Feeling Better February" to "Feeling Better March!" Hmmmm, doesn't have as nice of a ring to it, but you now what, I'll take it! I'm off antibiotics and my MRSA sores are healing the way they should be. I don't want to jinx myself, but it's looking like I'm infection free! Woohoo!!
The last few months haven't been fun, but through it all, my CA 27-29 tumor marker has surprisingly shown a downward trend. Now, before I get too excited, I have to remind myself that this is a marker that isn't 100% reliable... used more as guide that "should" (in theory) correlate to what's going on. It's a blood test that is drawn w/ the rest of my labs that I can get more often than the much more reliable images of a CT or PET scan. "If" my tumor marker is going down, I "should" expect to see positive results from a PET scan. However back in Oct, before I started that drug trial down in San Antonio, even though my tumor marker was steadily increasing, a PET scan at the time showed an overall improvement. Ya, doesn't make sense. When I received the good news of that PET scan I was of course relieved and excited, but at the same time I was pissed for getting so worked up over the tumor marker increasing week after week... I had obviously been expecting bad news from the PET. So for awhile there I have to say I lost faith in the tumor marker b/c I couldn't trust it.
BUT now that the tumor marker is going down (moving in the right direction)... maybe I'll give it one more chance to redeem itself. I have a PET scan on Wednesday and I just KNOW it's going to show good results! I mean come on, the CA 27-29 tumor marker doesn't lie!!!! Oh wait! It does... Well, at least I can accept my love/hate relationship w/ my tumor marker!! This time will be different! You'll see!!
Lets take a closer look at what my CA 27-29 tumor marker has been up to!
(Note: Normal range is less than 35)
"A day in the life of my CA 27-29 tumor marker"
08/01/11 160
08/17/11 244.9
08/29/11 315.4
09/07/11 278.8
09/15/11 271.1
09/20/11 304.5
10/04/11 320.6
10/17/11 412.6 (At this time, even though PET showed improvement, I decided to participate in the drug trial in S.A.)
November (I was not tested for this tumor marker while on the study)
12/05/11 (Results from CT showed more cancer on my liver so I was pulled from the trial... Back to the drawing board!)
12/07/11 (New chemo cocktail begins. Unfortunately I was not tested to see what my tumor marker was at this time)
12/28/11 714.6 (Yowzers! That's high! Wish I knew what the marker was when I started this cocktail)
01/05/12 343.7
01/18/12 210
02/01/12 132.8
02/08/12 201.3
02/15/12 127.7
02/29/12 92 (Woohoo! Double digits!!)
My next PET scan is this Wednesday... so we'll see how accurate the tumor marker is this go around. I'm hoping to get the results of the PET by the end of this week. I'll keep you posted with the good news!! ;)
Friday, February 17, 2012
MRSA MRSA Me!!!
Because 2 infections this year just wasn't enough...
It's mid February (what was supposed to be "Feeling Better February" I might add), and I'm taking my 4th antibiotic for my 3rd infection of the year. SHESH!! After recovering from the digestive system & upper respiratory infection, I had some other "minor" side effects going on that I was juggling with. First of all, ever since I started chemo I've been having issues with my finger and toe nails. They're not quite as strong as they used to be and they're not growing back as cooperatively as they used to either. Weird, but if anything annoying! About a week or 2 ago I had an ingrown toe nail removed and the root deadened. First of all, who knew an ingrown nail could be so painful?! Anywho, I got it taken care of and started all the procedures to avoid infection (soaking in epsom salt, treating it with antibacterial lotion, etc). I mean come on, the last thing I need is another infection... I'm all over this toe!! On top of that I started getting that "rash" I had not long after the holidays (thought to be caused by one of the drugs I'm taking)... several spots/"sores" all over my body. There were quite a few, but there were 5 in particular that were bigger then the rest... 2 on my upper back (right on the bra line conveniently), 1 in the lower middle of my back and 2 on the upper back side of both legs. I began treating them like I did previously and was looking forward to "Feeling Better February." During all of this I got the approval from Dr. H to hold off on one of my IV drugs (Navelbine) and one of my oral drugs (Tykerb) to give my body a break. Thank God! I had reached my breaking point... enough is enough! The month of January is not one I'd like to repeat! Talk about being pretty darn uncomfortable!
So this brings us up to last Friday... Overnight the "sores" got worse. They had almost swollen up into welts, like I was stung by a bee. Talk about EXTREMELY painful! I could barely put any pressure on them so you could imagine me trying to sit down with so many of them on my back side. Not fun! So yes, I played the Cancer Card and got into my Dermatologist's office that afternoon. Dr. Derm decided to numb one of the areas (OUCH) and take a biopsy and culture of the sore that looked the angriest... just so happened to be the one in the lower middle of my back. She gave me some topical lotion, antibiotics and an Rx for pain pills to take "if" they started to get worse over the weekend. Otherwise, we just needed to sit tight a couple of days and wait for the results to come in and hopefully find out what these things are and what's causing them. So I start heading home. Thinking I could swing by HEB to pick up a Rx or 2. OH MY GOD! OH MY GOD! OH MY GOD!! The numbing on my back started to wear off. My back was on F-I-R-E!! You should have seen the way I was driving!! I was pulled up as close to the steering wheel as possible... irritating the hell out of the sores on my leg, but my back was just killing me. And I was uncontrollably balling!!! (Not to be confused with "a Baller"). How I made it home without getting into an accident is beyond me!! That should have been the first clue that it was going to be a long weekend!
Saturday... HOLY CRAP!! They got worse!!! They got worse!!! They were bigger, swollen and to be quite honest, PISSED OFF!!! I can't really describe how uncomfortable I was. Remember the movie Spaceballs? Of course you do! Then you'll remember the scene where the alien pops out of the guy's stomach and dances down the bar with the hat and cane. Come on!! Tell me you remember this!! Well, that's what I was fully expecting to pop out of one of these sores! To make it worse, I had to cancel my plans that night. Seriously, I had a girls night out (a little rodeo and concert action down in S.A.) on my calendar for weeks. I swear, I'm jinxed if I put anything fun on my calendar! This cancer is REALLY pissing me off!! So needless to say, I had a pretty rough weekend.
Monday... back to Dr. Derm. The sores, which I began to call "boils" (yes, a pretty disgusting, ugly word if you ask me), were just too painful! Dr. Derm just had to do something. This entailed more numbing and "expressing" the sites. BLEEEEEEEHHHHHHHHHH!! I'm not quite sure how much fluid she "expressed" from these "boils," but I could instantly tell that it relieved some of the pressure around them. Thankfully J was my chauffeur that day so I didn't have to worry about driving. I'm sure I looked pretty ridiculous w/ the way I was sitting, but at least I wouldn't be causing any accidents!
Tuesday... Well, at this point, J and I decided that we needed some help since I've been completely useless up to this point (more so than usual... just to clarify). J had been waiting on me hand and foot. So what a great excuse to fly in my mom!! And what do you know... the biopsy and culture results are in! Turns out I have a MRSA Staph Infection. (Insert: Debbie Downer Music).
So what did YOU do for YOUR Valentine's Day???
After getting out of a nice long, hot shower on Tuesday night, I was standing in my bathroom, half naked, facing the wall, I noticed that I was tightly gripping (white knuckles and all) my towel rack to keep myself steady. (Side note: If you think there is going to be anything sexy or erotic to follow... you're reading the wrong, damn blog). I glanced into the mirror, saw my reflection and thought to myself... never in a million years did I expect to have my husband AND my mom standing behind me, cleansing, expressing and treating boils on my back side! UGH! What has my life come to?!? Again, not something I was hoping to check off of my things to do in life list!! I just knew I'd be able to laugh about it one day and was looking forward to the first person to ask me, "so what did you do for Valentine's Day?"
So this week I'm back on Tykerb, but we decided to hold off on Navelbine another week since that infusion suppresses my immune system. At this point we really need to get over this staph infection. So yes, I'm on antibiotics for ANOTHER 10 days. We've also added a weekly dose of Iron to my chemo regime due to a recent iron deficiency. In the meantime, I'm going to enjoy my mom being in town and helping out and looking forward to my dad coming into town this weekend. Oh look... a fun weekend that WASN'T on my calendar! Ah ha! Didn't see that one coming did you Mr. Cancer!!
For those of you who missed the alien scene... "Oh No! Not again!"
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