Saturday, November 5, 2011

Saaaaaaay Whaaaaaaaaat?!?

I just wrapped up all the initial lab work, scans, images, tests and paperwork for the clinical trial down in San Antonio.  Jason is recovering from bronchitis so my mother in law, Marion, swooped in and saved the day.  I can't thank her enough for going with me and sitting through the lineup of... well, just about every medical test known to man.  That and we had a hell of a great time!  

At this time I would like to clarify one small, itsy bitsy detail... as I was about to sign the consent form, my attorney and I reviewed the consent one last time (yes, having a mother in law who is an attorney is quite convenient... of course being able to say "my attorney" just makes me sound so much more important).  The consent reads: "An open label Phase 1 dose (hmmmm, I thought HDM1 was in phase 2) escalation study to evaluate the safety, tolerability, pharmacokinetics, maximum tolerated dose and biomarker response after intravenous administration of weekly "BAY 80-6946" (Saaaaaaay Whaaaaaaaat?!?) to patients with advanced cancer."  Whoa, whoa, whoa... BAY What?!?  What happened to the Trojan Horse, miracle drug TDM1???  Well, APPARENTLY TDM1 had been mentioned in a Drs appt and we took the name and ran with it.  That is in fact NOT the trial I will partake in.  So this whole time I've been excited about the wrong drug... GREAT!!  But the good news is this "BAY 80-6946" (okay, they really need a new name for this bad boy) does all the great things that I was excited about... targets the cells, has minimal side effects and lets not forget the most exciting thing, the frequent scans and images that comes along w/ the trial.  So after discussing this new drug with my attorney, I signed the consent forms.  Oh ya, we're doing this!  So next week I'll have my first infusion on Wednesday, the 9th.  My next PET scan will be 2 days later on Friday.  There is a strong possibility that after only 2 days we'll see improvement.  How crazy is that?!?  I'm so excited about this trial and can't wait to see what happens.  So yes, I'm excited about this "miracle drug"... it's just another miracle drug I'm excited about!

1 comment:

  1. Pretty handy to have both your attorney & mother-in-law in the same room. You're in good hands!

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