We started out the day by leaving Austin at 5:45 am. We arrived at the START clinic this morning at 7:45 am... it's 9:00 pm and we're still here. The infusion lasted about an hour, but I'm being kept here till 10:30/11 pm to be closely monitored. One of the side effects I was warned about when joining this clinical trial was high blood sugar levels. Sure enough, my blood sugar levels increased so I've been given a couple of insulin shots. Since then the levels have begun decreasing so we're hoping to get out of here in the next hour or two. It's been a loooooong day! Tomorrow I'll have more lab work and a bone scan. On Friday I'll have even more lab work and a PET scan.
I'm feeling great and looking forward to the possibility that we'll see results in Friday's PET scan. We probably won't get the results till next week, but I'll be sure to keep you posted. As for the master plan, I'll be getting weekly infusions in San Antonio for 3 weeks and then I'll take the 4th week off (no infusion, but I'll of course have lab work done). That's considered 1 cycle and I guess we'll just repeat the cycle as necessary.
Again, it's been a loooooong day so I'm signing off. Hope everyone is having a great week so far! And yes, I hope that means you're resting up before for the big race this Sunday!!
Go Casey! I hope you get some good news from these new treatments. The waiting part must be hard.
ReplyDeleteMy running club recently started a new tradition of an easy, short run followed by Starbucks on the Thursday morning before a big weekend race. We met this morning to send off a few of our runners with good vibes. So just know there was some good luck sent your way this morning from Raleigh, NC! Have fun on Sunday!
Hugs, Steph