Saturday, October 13, 2012

National Metastatic Breast Cancer Awareness Day


Because this is breast cancer awareness month, I've been putting a lot of thought into "what exactly does that mean."  Yes, it has been confirmed... we are in fact aware that breast cancer exists.  But what else?  What can we learn from this?  When I was diagnosed I had no idea what metastatic breast cancer was.  The last 2 years have been quite a learning experience for me so I thought I'd use this opportunity to share a few things I've learned along the way.  And what do you know, October 13th just so happens to be National Metastatic Breast Cancer Awareness Day.
 
So lets get our learn on...
 
The Metastatic Breast Cancer Network (MBCN) is a national, independent, non-profit, patient advocacy group dedicated to the unique concerns of the women and men living with metastatic breast cancer.  If you get a chance, please check out their website.  There are some interesting and eye opening articles and stories of those living with metastatic breast cancer.  Of course I know we all have crazy, busy schedules, so from their website I pulled the 13 facts everyone should know about metastatic breast cancer...
 
13 Facts Everyone Should Know about Metastatic Breast Cancer

1. No one dies from breast cancer that remains in the breast. Metastasis occurs when cancerous cells travel to a vital organ and that is what threatens life.

 2. Metastasis refers to the spread of cancer to different parts of the body, typically the bones, liver, lungs and brain.

 3. An estimated 155,000 Americans are currently living with metastatic breast cancer. Metastatic breast cancer accounts for approximately 40,000 deaths annually in the U.S.

 4. Treatment for metastatic breast cancer is lifelong and focuses on control of the disease and quality of life.

 5. About 6% to 10% of people are Stage IV from their initial diagnosis.

 6. Early detection does not guarantee a cure. Metastatic breast cancer can occur 5, 10 or 15 years after a person’s original diagnosis and successful treatment checkups and annual mammograms.

 7. 20% to 30% of people initially diagnosed with early stage disease will develop metastatic breast cancer.

 8. Young people, as well as men, can be diagnosed with metastatic breast cancer.

 9. Like early stage breast cancer, there are different types of metastatic breast cancer.

 10. Treatment choices are guided by breast cancer type, location and extent of metastasis in the body, previous treatments and other factors.

 11. Metastatic breast cancer is not an automatic death sentence. Although most people will ultimately die of their disease, some will live long and productive lives.

 12. There are no definitive prognostic statistics for metastatic breast cancer. Every patient and their disease is unique.

 13. To learn more about National Metastatic Breast Cancer Awareness Day on October 13 and to access resources specifically for people living with metastatic breast cancer and their caregivers, visit http://mbcn.org/

Friday, October 12, 2012

2012 Komen Update


I just wanted to clarify what's going on with the Komen race this year...

1. I was hoping to redirect some of my fundraising efforts to the Mamma Jamma ride. Quite a few of my fellow Pink Ribbon Cowgirls are riding and since I'm unable to ride, this was my way of supporting them at the same time supporting local charities who will benefit from the fundraising. I can't thank those of you enough who have contributed!

2. I was really, really hoping to participate and walk in this year's Komen race. Unfortunately, due to the pain I have been experiencing in my hip recently, I've decided that walking isn't a good idea. But I encourage everyone to join the team and walk your hearts out. I had a blast last year and it was an experience I'll never forget. Hopefully I'll be joining y'all next year!

Tuesday, October 9, 2012

(Knock on Wood)


Hey hey!  It's October and it has been a helluva better month than September so far (knock on wood).  And speaking of October...

We all know October is Breast Cancer Awareness month.  If you are unaware of this, I can only assume you are color blind... pink is EVERYWHERE!  So because it's breast cancer awareness month, Austin's KEYE TV's Mileka Lincoln is running a series of stories about breast cancer featuring education and the importance of information in the fight against breast cancer.  So last week I received an email from my Doctors office asking if I'd be interested in meeting w/ Mileka and I thought... sure, interviewing w/ a slight case of chemo brain... what could go wrong?!  

And so the interview begins...

Mileka Lincoln:  Could you please state your name and spell it for me

Me:  Casey Damen, that's C-A-S-E-Y D-A-M-E-N.  (Me thinking:  wait, did I spell that right?!  I hope my pronunciation was enough.  I mean so many people think my last name is spelled Damon or Damien.  And one time someone thought it was Demon.  Really, could you imagine my last name being Demon... Whoa, did she just ask me another question???  Ahhhhhh crap!)

From there on I was COMPLETELY thrown off my game!  I had so many things I wanted to say... apparently my spiel on quantum physics didn't make the cut.  Hmmm, well, maybe next time!

Click Here to check out the interview.  

And speaking of clinical trials, I had a long day in the infusion room yesterday w/ my first infusion of MM-111.  So far I'm feeling pretty good (knock on wood).  I'll keep you posted... there's more to come in October.

Thursday, October 4, 2012

Open Arms


Have you ever had "one of those days?"  You know what I'm talking about... a day when nothing seems to be going right.  You feel like you're drowning or suffocating because one thing after another negatively effects you.  Whether it's physically or mentally or a combination of both.  Well, September was "one of those months!"  

So October, I welcome you with open arms!  

I'm trying real hard to process everything that's going on in my life while trying to stay positive and have a good attitude.  And let me tell you, just b/c I appear to have a "positive attitude" about all this... not a day goes by that I don't say Cuck Fancer!  Well, at least some version of that!  I feel myself pulling out of a funk and trying to get that fighting spirit back (I know, do you have the Eye of the Tiger playing in your head too?).  I'll be starting my new trial drug (MM-111) on Monday and hopefully this will be the other, other, other secret weapon!  Until then, here are a few things that have brought a smile to my face... 

1.  Spending time with my sister, her husband and my 2 amazing nieces...

Cheers!


2.  Realizing that so many generous people have donated to my Mamma Jamma Ride fundraising goal.  You know you want to check out my fundraising honor roll!  Are you on it?!?  CLICK HERE!

3.  A few pictures from my recent trip to British Columbia, Canada...




Shotgun!

 Vancouver


Look at me... I'm on a yaaaaaaaacht!


Take 2!




Tag team!


Please, oh please let my hair grow back like this!

Embracing the bald head!